ABOUT US

Rare Bootcamp

The Rare Bootcamp is a multi-day forum hosted by Ultragenyx and EveryLife Foundation for Rare Diseases to provide parents and other patient advocates seeking to develop rare disease therapies with an opportunity to connect with their peers and to learn from rare disease drug development experts.

UPCOMING EVENTS
NOV 17–19 2026

San Francisco Bay Area

California, USA

3-day event
APR 06–08 2027

Boston

Massachusetts, USA

3-day event
RESOURCES

Thank you for attending!

You can find the presentation materials here. Refresh your knowledge as you move through the journey toward a medicine

Access Presentations
ARTICLES

Rare Bootcamp in the news

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CNBC

Rare disease families find roadmap to drug development at bootcamps

Developing a new drug can cost a billion dollars and take more than a decade. That makes investing in new treatments in the rare disease space — where patient populations are small, and the chance of earning a return on that investment even smaller — a risky bet for big pharmaceutical companies.

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MassBio

Rare Disease Parents: Finding Your Community and Your Voice

Guest Blog By Erin Frey, Senior Director, State Government Affairs, Ultragenyx

Thank you to our 2026 sponsors and partners