Welcome to
Rare Bootcamp
The Rare Bootcamp is designed to provide parents and patient advocates seeking to develop rare disease therapies with an opportunity to learn from rare disease drug development experts and to connect with their peers. Typically, Rare Bootcamp attendees are actively funding research and/or pursuing potential therapeutic approaches.
If you are interested in participating in an upcoming bootcamp, please fill out the Bootcamp Participant Form and someone from our team will follow up.
The Rare Bootcamp is a multi-day forum hosted by Ultragenyx and EveryLife Foundation for Rare Diseases to provide parents and other patient advocates seeking to develop rare disease therapies with an opportunity to connect with their peers and to learn from rare disease drug development experts.
You can find the presentation materials here. Refresh your knowledge as you move through the journey toward a medicine
Access Presentations
Lorem Ipsum is simply dummy text of the printing and type setting industry standards and strong policies framework.
Browse
Rare disease families find roadmap to drug development at bootcamps
Developing a new drug can cost a billion dollars and take more than a decade. That makes investing in new treatments in the rare disease space — where patient populations are small, and the chance of earning a return on that investment even smaller — a risky bet for big pharmaceutical companies.
Rare Disease Parents: Finding Your Community and Your Voice
Guest Blog By Erin Frey, Senior Director, State Government Affairs, Ultragenyx